Hemispherectomy Foundation

The Hemispherectomy Foundation is a 501(c)(3) non-profit organization founded to provide a support structure for children, and the families of children who have had or are preparing to have hemispherectomy brain surgery. The foundation also provides scholarships for college, trade schools, and summer camps, as well as financial assistance and other support as needed. It is based in Aledo, Texas.[2]

The Hemispherectomy Foundation
FoundedJune 23, 2008
Focus"Dedicated to providing emotional, financial, and educational support for individuals and their families who have undergone or will undergo hemispherectomy brain surgery, or similar brain surgery."[1]
Location
Area served
international
MethodScholarships, Financial aid, Peer Support, Education.
Key people
Cris Hall, executive director
Kristi Hall, president and chief executive officer
Jane Stefanik, VP and chief financial officer
Ben Carson, M.D., honorary chair, medical advisory board
Websitewww.hemifoundation.org/

History

The Hemispherectomy Foundation was founded in 2008, when a six-year-old girl, Jessie Hall,[3] was hospitalized with Rasmussen's Encephalitis at Johns Hopkins Hospital. Jessie was undergoing hemispherectomy surgery (removal or disconnection of one-half of the brain) to control continuous seizures.

Although The Hemispherectomy Foundation is based in the United States of America,[4] it provides support globally.[5]

Ben Carson, M.D., director of pediatric neurosurgery, at Johns Hopkins Hospital in Baltimore, Maryland, is the honorary chair of the foundation's medical advisory board. He assumed this position in January, 2009.

References
  1. "Hemispherectomy Foundation". Retrieved 2009-02-25.
  2. "The Community News". Archived from the original on 2013-02-09. Retrieved 2009-12-21.
  3. "Hopkins Children's". Retrieved 2009-06-06.
  4. "San Gabriel Valley Tribune". Archived from the original on 2009-06-10. Retrieved 2009-06-10.
  5. "Weatherford Democrat". Archived from the original on 2013-02-09. Retrieved 2009-06-06.


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